Some time ago, a journalist who works for the association asked me a little interview: as my German is indecent, I answered questions in Italian, and then someone else has thought to translate into German . 1. Mr. Thu, who are you?
1. My name is Sun, I'm 30 and I was born a # #. My father is a doctor, and he was to diagnose the syndrome when I was still very small. Among my relatives there are none that clearly manifest the # # symptoms of the syndrome, which conversely are very clear in my case. I do not remember any day of my life in which I myself I realized that I was physically different from the others until the age of nine years, however, my life was almost normal. Like the other children I had fun playing ball, or climbing trees. Every so often happened that I had to do some medical check a bit 'special: in Germany, for example, I was a child, for the eye examinations at a luminary who worked at the University. To follow the progress of my scoliosis, but I was mostly a result of Milan. Was it 1987 when a noted orthopedic suggested for me to use a Milwaukee brace. I remember still like it happened yesterday I felt the feeling of imprisonment that the first time I wore it. As a child absolutely not conscious of my condition, I lived all these experiences as purely temporary and therefore without any anxiety. How to go to the dentist: a few minutes of suffering that can endure very well and back playing football. Not that I used never corset, but soon I would have to resign ourselves to a still different from the everyday that I had known until then. In 1988 I suffered the first intervention column: Unfortunately the operation went very badly. I returned home after months in hospital, and even those who returned did not look like the child that I had been before. It followed a period rather Heavy after two interventions in the back of my column, the situation was stabilized, but he aggravated the heart condition, eye and kidney. Today, after 8 surgeries, I think I can say that I feel relatively well and I am very grateful to all physicians who have helped me.
2. Why are you working on # # - what did you decide to work made in # #?
1. Vision problems and heart disease that are exacerbated during the college years, have made it difficult in some ways to achieve my degree. Once finished university, I then tried to find work in Italy. I did not think there any way seek employment away from home. Unfortunately, despite several attempts, I could not find any work in Italy, despite some legislative measures to protect people with physical problems. E 'but was' a good idea to work hard to get a good education: after so many failed attempts in Italy, I decided to seek work abroad, also reassured by the positive opinion of some of my doctors. A friend of mine worked for some years at the University of # # and spoke to me in glowing terms of # #. I then responded to a job offer of your university: I did not mention in my resume of my physical condition. I knew though that once met in person in charge of the project, I would have to address the problem. Once my work presented and discussed aspects technicians to Ph.D. candidates who I was because I was invited for a face to face with the leader of my group. The questions have been asked were very clear and direct: my answers, I think, too. It is certainly not an easy decision to entrust a person with health problems, a project that you want to be competitive. I am extremely grateful to those who wanted to believe in me, especially because after all waste collected in Italy, I was afraid they have no chance of really working. I wonder one thing: if I wrote in my resume, my health problems, I would still called for the interview?
5. Syndrome # # does play a role in your daily life and if so, Which One.
1. Definitely yes, but overall he played a key role in my life, every day of my life. Much of the choices I made were designed to minimize the impact of the disease. But mostly I wonder what it means for others the fact that I am different from most people, and how to change their behavior toward me. To these questions I can not answer: but the responses that individuals give to these questions clearly plays a large role in my life. It is after all the same for you?
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